Jade's Journey

Jade was released from the hospital on the 14th!!! Woohoo! She had a pretty good week. We had a few issues with her ankles acting up. We had x-rays done 4 weeks ago that came back with nothing, but we had an MRI done the day we left. (Jade’s first one and she did GREAT!) We waited all day and all night to get the MRI done and during that time Jade decided she would try to make water balloons to throw at Emil (the tech). When the water balloons didn’t pop Brooke (her nurse) decided it would be better to use syringes filled with water! We got the results back on the MRI last week and it showed that her marrow was slightly inflamed, but the doctors don’t think that it would cause as much pain as Jade has been having. So we are still trying to figure it out! Jade got to see some old friends and she met some new friends this week! She also got to see her favorite nurses!!! Her Aunt Susan came to visit and brought some fun little toys…one of which was an animal balloon making kit! We were pretty much scaring everyone because the balloons kept popping! Jade can now make a pretty awesome balloon dog! (See Below)

Today we went in to check her counts again because they were low on Friday and on Monday. Her hemoglobin is going back up on its own and so are her platelets! Her ANC was at 18,000 on Monday (from her neupogen shots) and it dropped to 1,020 today. Her immunoglobulin was really low so they had to give her an infusion of IVIG. This infuses infection-fighting antibodies to help her fight of infection. So far she has only had one side effect from it, nausea. We are hoping to make counts this upcoming Tuesday so that we can stay on track! This next trip will hopefully only be for 2 or 3 days, but last time she had this particular chemo it did not go so well! Crossing our fingers!!! We had a mini reunion at the clinic today…Jade got to see her BFFs Jack, Carson and Jordan! She was really happy to see them! She really misses her friends that have finished their treatments, but she is happy that they don’t have to go into the hospital anymore!

Oh one more thing…Jade came down stairs after taking her bath tonight and said “Mommy look at my hands!” Her hands were covered in hair! So we decided to shave it again. I gave her a mohawk as a joke and she really liked it, so she is now rocking a mohawk! She looks AWESOME! See the picture below!

I will let you know how things go next week!

Jade made counts this week, so we are back in the hospital for 5 days of chemo. Her hair is supposed to start falling out again with this round of chemo. It has grown in a lot over the past month, but Jade has decided that when we get home on Saturday she wants to shave her head again!

Also, as I told you all before Jade was interviewed by ABC 7 news last month. Well today she was all over TV on commercials for Trevor’s Treasures!!! It will be on tomorrow evening at 5:00pm! She is pretty excited about it!

Jade is doing well! Since she has been out she has been having lots of fun playing in the sprinkler and riding her bike up and down the driveway! We are waiting for the pool to warm up so that she can jump in! Jade found out today that her Grandpa Gene is in town from London and she gets to see him on Thursday! She is sooooo super excited about it!

We went into the hospital for another round of chemo last Monday and got out on Thursday. She was so happy to see all of her nurses while she was in the hospital! While we were in there Jade was able to meet Declan. (Declan’s Auntie Cathie used to work with me back at Richmond American Homes) He is an absolute sweetheart!

We went to the clinic today to get a spinal tap and to go back to the hospital for a week, but she didn’t make counts. Her ANC is only at 410. (which means her immune system is not good) It needs to be at 750 to be able to do the treatments. One good thing is her platelets are good and so is her hemoglobin, so she didn’t need any platelet or blood transfusions!  She was also able to see some of her friends at the clinic that she hasn’t seen in a while. We will be trying again next Monday…so cross your fingers!!! I will let you know how things go!