Update…
Sorry it has been so long since the last update, things have been a little hectic!
A little bit about our last trip to the hospital….
Jade did pretty well on the new medicines, but unfortunately we had to find out the hard way that she would have a bad reaction to one of the generic versions of the chemo called Ifosfamide. On Friday (Jan 8th) she woke up during the night and was having uncontrollable movement in her jaw, this is called dystonia, she then proceeded to have seizure like symptoms through the rest of the night. Apparently the dystonia is common on the generic version of this chemo, but the seizure reactions are rare. The doctors switched her to the brand name version (Ifex) the next go around and she was fine.
Quick rant about insurance companies…
I understand that you are trying to “save” money, but if there is proof that a child is more likely to have a reaction to a generic version than on a brand name version why would you ever make them be a guinea pig to prove that they need the name brand?! Aren’t they going through enough as it is?!?! OK, enough about that.
Last hospital stay continued….
She then also got a fever which made her have to stay an extra day in the hospital. Jade got to go home on Tuesday afternoon. We then had to return to the hospital the next morning for a round of chemo to her spinal fluid, but she got to leave right after. Little miss Jade’s attitude has held up well, despite everything that has been going on! Jade and her friend Lauren got to be roomies one night because the hem/onc unit was full. They both had received make up kits from Child Life and had a little make up party 
She has been playing a lot of Uno and Candy Land. Oh and lots of arts and crafts too! There are some pictures below of her last stay!
Since the last Hospital stay…
We had a follow up doctors appointment at the Children’s Hospital Clinic on Friday (Jan. 12th). When they took her blood work her counts came back very low. Her immune system had been knocked out by the chemo (which is expected). We ended up having to come back to the hospital right after the doctors appointment to get a blood and platelet transfusion. She was only supposed to be in there for a few hours, but by the time we got to the hospital Jade’s little body decided it wanted to have a fever! So we are now in here for a little bit! The doctors are saying that all of her blood work is coming back negative, so they are thinking it is a neutropenic fever. (neutropenic ~ a low amount of neutrophils, which are white blood cells that can fight off infection.) We are now just waiting to get her ANC count to come up and her fever to go away for her to be able to go home again!
What happens next…
Jade will be starting a new round of medicines on January 27th, she will be in the hospital for about 4 to 5 days during that stay.
Hi!
I love the pictures, they’re so cute.
-Hailey
Jade-
Wow! What a totally AWESOME surprise to hear your voice today. I really needed someone to make me smile, and you did! You are a super girl and, I am so proud of how strong you are.
You are in my thoughts and my prayers each new day.
I am looking forward to seeing you soon.
BIG HUGS and LOVE!
Mrs. C.
Hi Kiddo,
I just wanted to let you know that I think about you everyday and I miss seeing your beautiful smile.
I hope I get to see you soon because I have something special for you and Hailey.
Love you bunches!
Carrie
Hi Jade!
I hope that today was an easy day for you. Wishing you a wonderful weekend.
Much love to you!
Mrs. C.
I was just thinking of you tonite Jade and I told Alonso how cool you are! He really wants to meet you!
Have a great week
Talía
Jade, I told you that you had the perfect shaped head for being “bald” !!! I loved the photo your Mom posted on FB. You & your big grin make my heart happy. BIG Hug. Grandma
Jade, I think it’s great that your friend Lauren shaved her head and you two get to hang out with each other this hospital visit. Can’t wait to see new photos. Sending lots of love your way. Grandma
Gigi says “You are as beautiful as ever”. I think you have the correct head for losing your hair. I wish mine would look that good.
Jade-
I think it is awesome to see how nicely you are taking good care of yourself. 
My thoughts and prayers are always with you. You are such a brave girl. 
I hope to come and see you soon!
You are really a great nurse. I am so impressed.
Well,yesterday and today have been very snowy days in Virginia Beach. I was hoping to come and see you this weekend,but I am stuck in the house because of the snow. It does look really pretty outside though!
I hope that you have had an easy weekend.
Miss you and BIG HUGS!
Mrs. C.
Jade – So sorry I have not written in so long:) I just watched your video – what a very brave girl you are – I am so proud of you. Sending many prayers your way that this week goes well for you kiddo. We had a snow day today, so I’m home relaxing with my three boys – hoping the roads clear so we can go back to school tomorrow. You take care of you and remember I think of you everyday and send many prayers, hugs and kisses your way.
Love, Mrs. Stinard